New frag, came early

Sorry its been sooooo long.

It's been 110 days and he is still in the NICU. Probably will be for 1 or 2 months more.

He had his takedown surgery and the surgery went well but coming off the ventilator was harder than expected. They tried once and he "code blued" in 30 min.

The doctors all say the lung issues will pass. But it's getting past that point that may take awhile

He is having a hard time eating on his own, bottle or breast. They are barley starting to try both since his oxygen needs are getting better.

He has bad acid reflux, and they say a "g tube" for feeding will be necessary. We are trying to fight them on it.(when I have reflux I don't want to eat either).

We found out today that for the last 2 1/2 weeks ( same time as reflux issues started getting bad) that the milk bank was putting the wrong fortifier in his milk and it's more harsh than the other one he should be getting. So this may be the issue why he can't eat by mouth yet and why the reflux is sooo bad.

Anyways, it's a waiting game and we sit there while other people come and go. Itso a hard waiting time and to think it may be 30-60+ more is even harder

Tough times, my prayers are with you.

Good luck to you all.   Hang in there.  

good to hear